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Showing posts with the label Diagnosis

Inside Out: The Things You Can See and the Things You Can't

TW: Mention of overdose, self-harm, and suicidal thinking

I'm Sure I Was Somewhere. Do I Get a T-Shirt?

What if you were there already and didn’t realise because there was no big red YOU ARE HERE arrow on the map; no neon sign or text alert saying “This is it. You’ve reached that place the others were talking about.” There should be a kiosk selling BEEN THERE T-shirts or badges. Then you’d know. And others would know too. They say if you’ve never experienced something for yourself, you can’t understand what it’s like. I get the point, but it’s not precise enough for me. How similar must my experience be to yours, for me to understand what you’ve been through? Exactly the same? Somewhat similar? Who gets to decide? This is not a trivial question. Depending on the circumstance, it can affect friendships and other relationships. In the health sphere, it can affect access to services, care, and support. Peer support in particular is predicated on the concept of shared experience: Peer support brings together people with shared experiences, and these experiences can vary. For example...

A Landscape of Labels: Mapping Illness and Wellness

Imagine looking down on your country or continent from a plane. You are aware of the general terrain: mountains, lowlands, lakes and rivers. Perhaps you recognise some locations – places you have visited or heard about – but there are no lines or labels down there on the ground to distinguish this country or state from the next. Now take out a map of the same area. The map is not the landscape, it is a model of the landscape, and it is full of labels. This area has a line drawn around it. The area inside is labelled so . If it is a political map, the line might define a country; this line a different country, this line a county, state or principality. Select a different map of the same region. Maybe this one displays regions in terms of economic affluence, manufacturing output, average rainfall, or languages spoken. The area that was labelled “England” will now carry other labels. The labels applied depend on their definitions, and which maps we choose. Maps and labels are incr...

Visual Spaces

By Roiben I write this, looking back over a lifetime of not fitting into boxes. I have a severe hearing loss. I am Type 1 Diabetic. I have a mental illness. I am bisexual. I am many things that do not fit the “norm”. Today though, I want to talk about the thing I probably spend the least time talking about. I am visually impaired. I had cataracts as a baby, which permanently damaged my vision. I am blind in my left eye. It notices change in light and movement — but it can’t tell what is moving. My right eye has some damage to the cones and rods which mean I find it hard to distinguish between certain colours and shades. I also have Astigmatism and, as the right eye is doing all the grunt work, it can get tired easily. I also, thanks to years of Diabetes, have Stage 1 Retinopathy. Ultimately, this means I lack stereoscopic vision — I am not able to judge distance or speed of objects and have no depth perception. I am one of those people who need markers on steps and curbs to get ...